Showing posts with label real. Show all posts
Showing posts with label real. Show all posts

2.9.13

We all sing with the same voice, and we live in harmony




This is what sick looks lik. This is what sick IS. I don't look it? You don't realize that my body is fighting itself. You don't realize that I'm allergic to four antibiotics,  an asthma medication that would make my life a lot easier, and a food allergy. You don't realize that I have an autoimmune disorder, a neurological disorder, rods in my back, an eating disorder, PTSD, anxiety, and a non verbal learning disorder. You don't realize that I have a balance disorder, that I have a crapload of medications surging though my body. I don't look it, but you know what? This is what disabled is. 

 You see people like me every day, everywhere. You see people with disabilities everywhere you turn. We are people, just like you, and we have feelings, too. I understand it can be awkward at times when you come across someone with disabilities, but never fear! I'm hear to help you out and avoid awkwardness. NOTE: These are tips from MY personal experience. Other people with disabilities may have different feelings and a different take on life.


1. Never, ever ask me "What happened?" or any variant there of. If you want to know more about my disabilities, there are better ways to phrase it. It's awkward for both of us when I explain it's lifelong, and it's chronic. Trust me, you're not going to get an epic skiing accident story.
Nothing like that, I promise. You may think it's making friendly conversation, but you're really not and just making everyone uncomfortable. Also, don't ask it while I'm clearly struggling to walk or with a door. I'm really not in any shape to answer you then, and you're more likely to get a slightly rude come back. It's rude to ask a stranger these type of question. Get to know me for me. And then ask your questions. I'm more than happy to talk about my disorders with you, as long as you are respectful.

2. For the love of peaches, NEVER ask me "can I ask you a personal question?" This is a good analogy:
It's never okay to ask a random woman if she's pregnant. Same way, it's never okay to ask me if I'm able to have sex, if people want to date 'someone like me', if my husband/spouse/siblings are also disabled. YOU DON'T KNOW ME. YOU JUST MET ME ON THE BUS. It is NOT the time or place to ask me a "personal question" because generally? They are rude and disrespectful, and I am a human being, just like you. You wouldn't ask someone without a obvious physical impairment these questions, so why the hell is it okay to ask me?

3. Don't give me your home remedies. Don't tell me such and such person.  Don't tell me how if I do x, y, z I'll do better.
Don't tell me if I do crossfit, if I go paleo, my health will get better. I've already given up gluten for health reasons. I don't need your 'quick fixes'. My doctors and I have gone through many of these things. It isn't helpful for you to throw this at me, despite your good intentions.

4. Oh my god, don't play the Jesus card. You will seriously incur my wrath if you do.
If you say or act like that, I will get angry and upset. I have prayed so many times. I've wept to God to heal me, and he hasn't, for whatever reason. God has a reason for leaving me disabled, and I've come to terms with it. Please don't tell me to just pray. Please don't tell me if I just trust God, he will heal me. He hasn't chosen to heal me, for whatever reason. I don't know what that reason is. I don't know why I was chosen for this path, and why I'm destined to live a life of physical pain. But you know what? It's just the way things are.



Now, I do sometimes want to have this reaction to people who are stupid about disabilities:

Really, I just wanted an excuse to use this picture
But you know what? We are people too. We are just like you. We laugh, we play, we cry, we sing. We weep, we rejoice, we bleed, we heal. We do things differently. But we all sing with the same voice, and we live in harmony.

27.9.12

Through despair and hope, through faith and love

Seven years ago, everything was changing. Little did I know that just over a month later, everything would further spiral out of control. Me, the control freak that I am, would be left utterly helpless and shattered. How was I to know that age 18, soon everything I knew would change? How was I to know at 18, everything was going to be different soon? How was I to know that I would soon sink into utter despair, and not know when I would find hope again?

September 28, 2005 was the day I totally melted down from stress in the middle of my College Prep World History class. I remember just bursting into tears during a study period, and my teacher trying to console me. But me, being the stubborn person I am, threw up my walls and refused to let him in. Idiotic move there, Ang. Soon things would change so much. But I wonder how different it would have been had I opened up to the teacher then. But I was scared to death. I was only 18 and while legally an adult, if I told the other people at school what was going on, legal systems would be involved. Kind of funny how just over a month later, my faith in the legal system was shattered as well. Kind of funny how my faith in the church and the legal system both took a suckerpunch, and I still haven't regained faith in the legal system.

I guess it's kind of funny now that I'm going into the ministry. It's kind of my ultimate "screw you, bitches!" to the people who hurt me in the church. It's the proverbial middle finger to those who told me I'd never amount to anything, I'd never graduate college. Because you know what? I'm going to make a difference. My story of despair was not for naught, and I can turn it into hope. If I can make a difference in just one life, I will have had an effective ministry. If I can help just one teenager, just one child, if I can protect the child that others failed to protect, my work is complete.

I want to help the ones who slip through the cracks. The ones who fall to the wayside. It doesn't matter if no one else loves them, I want to love them. To turn despair into hope, and to administer faith and love. To be someone they can trust, and not someone who will shatter everything when one of the darkest secrets come to life.

And that is my dream. One of them. The other is to work in a summer camp for disabled children, but that's another post. Another day. Another night.

It's bedtime. Alarm goes off too early, but it's another little sleep night. Been too many of those lately, but not much I can do about it at the moment.

5.5.12

Because reason says I should have died three years ago

I am told that it is nothing short of a miracle I am alive, be it by the circumstances of life or be it by my own hand. I am told that many other people in my shoes would be homeless, would be drug addicts, would be drunkards. That I shouldn't be alive due to medicine mixups, ailments, and various things I have.

At the same time, I've been told that if I just had more faith I would be healed. If I just believed I could overcome, things would be better. The truth is, I've accepted things to be the way they are. It doesn't mean I don't channel my energy in recovery. What it does mean is like in the serenity prayer, I accept the things I cannot change and must have the courage to change the things I can.

Oh look, I can climb the twisty thing!
Just because I've accepted my disabilities, I feel, doesn't mean that I've let them pull me down. I've really beaten incredible odds. I've overcome so much. I still have much to overcome. I know that due to genetics my general health will continue to demolish itself. I know that if I try to push myself, believing if I just do a little better I can overcome, I will wind up making things a bazillion times worse. To focus on what I cannot do would be foolish. I can play on playgrounds, I can wade in the water. I can take walks. I can so much! Why pull myself down by  bashing myself?

I can play in the water!
I can't control what my father did in the past and I can't deny the impact it has with me today. I can control how I choose to act on the result. I can't control the fact that I'm disabled for likely life, but I can choose to accept it and make the best of my life, no matter how long or short it is. The important thing is that I keep on keeping on, and instead, continue to defy odds. Continue to shoot down the ones who say I can't make it. You know what? I may not make it in the traditional sense. But it doesn't mean I have to give up hope, that I have to quit at life. Instead, it fuels me to go forward, propels me to keep swimming (even though, well, I can't swim) and gives me a reason to survive.

And if you care to find me, look towards the western sky
As someone told me lately, everyone deserves a chance to fly
And if I'm flying solo, at least I'm flying free
To those who ground me take a message back from me!
Tell them how I'm defying gravity, I'm flying high, defying gravity...
Wicked - "Defying Gravity."


27.4.12

And I know, you won't feel this way forever

Not even a month ago, I was started on a new antidepressant. Before I was trapped in depression. Trapped.



But now things are looking up. I'm having horrible side effects, but maybe my nice shrink with a southern accent can find a similar one or maybe he can find something to counteract them.

There is just one week left of classes. One week!! It's at this lovely state in the semester where things are just not going all that well..


But it doesn't mean things are going poorly. I'm at my breaking point stress wise, but things are looking up. It doesn't mean things are perfect, but it means they are looking up. Things won't always be this way. 

Some days are still terrible. Some days I feel like relasping into self injury. I know, I know, it sounds silly and maybe it is. I recently passed the ten year mark from the first time I cut. I still remember that day, still remember it so clearly. And for so long, I thought I was so clever. That I was masking my pain. That I was dealing with my pain. That I had my own little secret way of dealing with the world, hidden under my shirt sleeves. But I was young, I was naive. I didn't know, couldn't know, wouldn't know that by masking the pain, when it came to surface, it only got worse. And so, when once one cut would suffice, now it would take two. Then three. Then four. Until my arms looked horrible. Until I had to move to my legs. And as much as I would welcome the nirvana, the bittersweet Ecstasy of cutting again... it's not worth it. At times I think the break from the pain would be worth it, then I'd deserve it coming back so much.

But the thing is? I don't deserve pain. For years, and I admit, some days I still do, it feels like  it was all my fault. Maybe if I had been a better behaved child. Maybe if I had been cuter. Maybe if I would have run away. Maybe if I would have done drugs. Maybe if I would have drank. Maybe if I would have told someone what my father was doing instead of hiding it, even denying it for years. Maybe if I would have fought back. I had so many chances in high school to say what my dad was doing. There was the time I fell apart in youth group, and one of the sponsors asked if everything was okay at home. There were the countless doctor appointments that asked if I was safe at home. There were the teachers that reached out to me.

The thing was, I was young and I was scared. Would people have believed me? Would things have gotten worse had I told? I don't know. But the thing is, it's not my fault. It wasn't my fault. It was never my fault.



And even if, for some reason, it was my fault, it doesn't make any of it okay. It doesn't make my childhood okay, even if I did mess up at times. It doesn't make what my dad did right, not remotely. And even if my actions DID cause him to act that way, it wasn't right. Not in any way shape or form.

That said, I started this blog taking one track, and it took another. Things are looking up. I'm finding hope again. Moreso, I'm enjoying things again. I'm not playing games just as an escape, but I'm enjoying them. It's the little things. I'm starting to sleep again, even! Sleep is good. Usually.

And now I'm going to play Final Fantasy 8 and talk on MSN for a bit before going to bed early, so tomorrow I can talk on MSN, clean, and do homework. So I can do what I love on Sunday and play music in church then come home and study and clean. I'm going to close this entry with lyrics to one of my favourite songs. ^_^

Spoken - Promise.
(Verse 1)
Yet another day seems like its wasted
You don't feel youre any closer to the prize
A dead end job where there's no future
Praying that tomorrow things wont be this way

(Chorus)
Things will get better this I promise you
And I know that you won't feel this way forever
Things will get better this I promise you
And I know loneliness wont last forever

(Verse 2)
Yet another day, another tired morning
You're catching up to your intentions
Your'e thinking life has to be easier than this
Maybe tomorrow things wont be this way

(Chorus)
Things will get better this I promise you
and I know it won't feel this way forever
Things will get better this I promise you
and I know we can find a way to make it better
things will get better this I promise you 

(Outro)
Things will get better this I promise you
And I know it won't feel this way forever
Things will get better this I promise you
And I know loneliness won't last forever
Things will get better this I promise you
And I know things will get better this I promise you
And I know things will get better this I promise you
And I know loneliness won't last forever

10.4.12

this is your life, are you who you want to be?

I'm kind of freaked out at the moment. Okay, let's rephrase that. I'm very freaked out. I very much want to go in the ministry. I want to teach, to reach, to help. But I don't think that Director of Christian Outreach is right. I'm not made to witness to people! I can't do these face to face convos, calling people to faith! I can't help a pregnant woman, because I don't fully believe that abortion is wrong. I can't help a gay person, because I don't know that it's wrong to be gay and I've become more accepting of it over the years.

But how can I be a director of Christian outreach when bringing people into the church freaks me out? I don't want to bring new people in - I want to help the ones who are here. I go into a cold sweat, panic, puke, cry, clam up, and my mind goes blank when I have to do this stuff - even though I know it all logically. I can do it over a messenger. But if i have to do it in person? It's a living hell. I'm not made to do this! I want to teach! I want to read about Mark (my favourite gospel) and make it relatable! I want to play with children! I want to do young adult ministry! (I can't deal with teenagers :P) I don't want to pull new people into the church! I'm fine with helping the broken, Lord knows i want to help those who have been broken be it by the church or by life or both. But I'm not the one to pull them into a relationship with Christ.

I've been struggling with this for awhile. It doesn't help that my eating disorder is out of control, it doesn't help that my pain and depression and ADD are not medicated. (I go to pick up my Remeron  tomorrow). It doesn't help that I'm struggling to pass math. It doesn't help that I'm trying to find an apartment, move off campus, line up doctor's appointments. And at times it feels like I'm doing it all single-handedly. It doesn't help that I feel so stressed out.

It's like I'm playing Pokemon, and I'm up against a trainer who has the attack that's super effective against me. We're down to a grass pokemon and a fire pokemon, and I have no other pokemon left other than my poor Leafeon and they're kicking ass with Rapidash. I can't flee from a trainer battle, and so attack after attack is hurled at me until I faint, until I black out.

Y U PICK ON ME? THAT NO IZ NICE.

Ahem. Anyway, I'm struggling with this. This is my life, is it who I want to be? I try to make the changes to make things better but it's hard. And there are some things I cannot change. I guess it's like the serenity prayer:

"God, grant me the serenity to accept the things I cannot change,
Courage to accept the things I can,
And wisdom to know the difference."

It just seems like such a struggle some days. Every attack is super effective, and wears me down more and more. I just don't know what to do anymore and how to keep pulling through. 

25.2.12

"I cannot find my voice."

I have this habit of locking down inside myself. Oh, there is so much happening. Images dancing in my head, sights, smells, sounds, twisting together, tangling, intertwined. It's safer to stay silent. It's safer not to speak. I'm afraid to speak out. Speaking out senior year and being shushed solidified that fear. I was only eighteen. I was a senior in high school. And I was heartbroken. I wouldn't wish the choices I made that cold October morning to my worst enemy. But yet, the choices let me to where I am today.


I've grown so much since my senior year. I should hope so, considering I'll have graduated six years ago come June. Six years is a long time, and even as I got my diploma that warm June evening, I had no idea the changes that would come over the next few years. I had no idea I would legally be declared disabled before 21. I had no idea I would sever ties with my mother as well. I had no idea that I would be called into the ministry. I had no idea I wouldn't finish college in Canada and that in 2012 I'd still be working on my undergraduate degree. I had no idea I'd live in frick-fracking MINNESOTA where it's frick-fracking cold. I had no idea I'd still be battling PTSD, cutting, eating disorder... I suppose I thought it'd magically stop, but NEWSFLASH: IT WON'T.

I had no idea that both my grandparents would die before I completed my undergraduate degree. I had no idea that I would make beautiful friendships, meet my future best friends, and go through heart-wrenching grief. I had no idea of any of that.

I had no idea at age 24 people would STILL think I'm 14. Heh. Funnily enough, side story. I was on my way to a doctor's appointment and I mentioned how I still had a specialist at the Children's Hospital. "Oh, you could easily pass for 14." Me: "Mmhmm." "You'll like  more as you get closer to your 30's!" *silence* "I'm 24." "WHAT?!" "Yeah, I'll be 25 in June." "...." "You're not 18?" 18 is the oldest I've been mistaken for in awhile, so I suppose that should make my happy. Anyway. Done with the side story.

Tori Amos said in her song "sometimes I hear my voice and it's been here, silent all these years." Problem is, I don't hear my voice. Sure, I blog and I write and I talk. But I bottle so much up. I keep so much inside me. And I don't know how to pull it out. There are things about my past that repulse me, that I haven't told anyone. And it scares me that it's there. And I don't want to talk about it because I'm afraid people, even those who want to help me so badly, won't like me anymore. Will think horrible things. Won't understand. And so, I carry the burden.

When will I realize how stupid that is?
When will I realize how dumb that is?
When will I find the way to pull out my voice and be strong?

15.2.12

And she fools all of her friends into thinking she's so strong but she still sleeps with the light on

My bed is soaked with sadness
My sadness has no end has no end
A downward of  spiral of dispair
That I keep falling in 
I need you how, how I need you 
(...)
Your silence is like death to me,
so won't you hear my desperate plea?
-I Need You, The Swift

It's hard some days to get myself out of bed. My alarm goes off, a few swear words slip past my lips, a stuffed animal may fly across the room. I'm not a morning person by nature, never have been. But when you're trapped in depression, when your greatest enemy is that reflection in the mirror, sometimes hauling yourself out of bed is one of the most difficult things of the day.

I suppose I make it sound like I'm drowning in depression. Some days I am. Some days I wonder why I get out of bed when I've barely slept the night before and daytime is the only time I'm able to actually sleep. When I'm running on two to three hours a sleep a night, and a couple hour nap during the day. Why I bother even trying to hope, trying to dream, when it seems like my hopes and dreams and wishes will just be crushed. It's hard.

Living with depression is like fighting a monster every morning. My days and nights are reversed. I just want solace - just some relief from all the pain I'm trapped in. It feels like just doing simple things - hanging out with friends, eating, hauling my butt out of bed, doing the laundry, drain all the effort and energy out of me and I'm left alone with my thoughts.

All I want to do is be free from this demon I battle. I want to be truly happy again, and not a person that I want to hide from. But I don't know how. I don't know how to open up about the past and allow people - friends, therapists, pastors, et al, help me. I don't know how to let people understand and even begin to give me a chance to have hope again.

For as much as I want to hope, dream, laugh, love, and carry on with my life, it scares the everliving shit out of me. All I've known for over a decade is depression. All I've known is bleakness. All I've known is living in fear and terror. And as exhilarating and thrilling the other side might be - it's completely unknown. It's something I've never felt before. What if it's too much? What if I don't like it? What if I taste the other side, and I don't like it at all? What if it hurts? What if I get a sampling of it, and I wind up falling back into depression? Would the relapse be that much worse because I've tasted the other side? Or would it be better once I pull out of the funk again, because I know what the other side is like? 

I get sick of trying various antidepressants. I get sick of feeling like this - I don't WANT to be like this! But how do I attempt something I've never tried, how do I try something I just don't know? How do I even attempt to spread my wings and fly, when every time I've tried to fly I've fallen?

Depression sucks. I'll leave you with Adventures in Depression because that sums it up better than I ever could.

5.2.12

I don't know how you do it

"I don't know how you do it."

I've been told it for years, really. "I don't know how you do it." The truth of the matter is? I don't know how I do it, either.

I wish I did. Thing is, when you have to do it, you do it. There's nothing impressive about what I've done. I've been paying my own bill since I was 21, managing my old medical stuff, all that stuff. It's what I have to do.

People tell me they couldn't do what I do. Truth is? I can't do what I do. You just have to throw yourself in and DO it.

29.1.12

You're beautiful, like a rainbow

One of my favourite commercials (more like a PSA)  has been the Dove - True Colors ad. I don't think it's been on television for a few years now. I remember it coming out my senior year of high school. That year sucked beyond measure, but that's a moot point.

Thing is? We all have things we don't like about ourselves. I struggle with my body image on a daily basis. It's a battle I constantly fight against myself.

The thing is? It doesn't matter that I walk with a limp or my knee snaps out of joint. It doesn't matter that my posture is awkward or I'm not a perfect weight. It doesn't matter because really, it's not much in the grand scheme of things. I doubt when my friends think of me they are thinking the same things I think when I look in the mirror (Gah, another blemish. Shit, my hair is a mess. Dammit, I look fat today. God, why don't my shoulders lie straight!). Instead, they think about the good things (and okay, maybe some of the annoying things like the fact they have to debate with me to get me to do things like, oh, eat) about my character.

It's hard to come to terms with the fact that while I belittle myself over my appearance, it's not what others do. And really, the things I hate so much are likely what others like. And I need to learn that it's not a big deal what's on the outside - that it's what's inside that really matters. And not fully inside, like my heart and my lungs (although I reckon those things are good as well) but the person I am deep within.

But I see your true colours shining through,
I see your true colours, and that's why I love you

(Wow, my nearly 3 am postings when I should be asleep are interesting. Curse you, insomnia!)

3.12.11

So tired that I couldn't even sleep

December 3, 2004.
3:43 AM Eastern Standard Time

"sometimes, i just want to give up. i just want to scream. and cry. just to avoid the look in people's eyes. just to avoid the look in people's eyes. it's why i hate talking to people, you see the pity in their eyes, not only pity, but concern, but love...

Did I say I hate love? I really don't know. I hate pity. I have having people worried about me, and concerned. And love...it almost scares me. I'm not talking about a boyfriend "oh my gosh you're so cute" love, or a grandmotherly "I want to squish you" love, I mean a more of..compassion? a more of I care about you, Angelique love. and in a way, it does scare me. having people love me. having people care about me. That honestly is a scary thing, because if I screw up, I have people who will be worried about me, because they do care. If I show them how much I'm hurting, I have people who will be worried about me, because they do care.

and it's just...I don't know. I don't even know anything anymore. Well, I know stuff, saying I don't know anything is like saying a fish doesn't know how to swim. and I just want to break down. and let someone hold me, and let me tell them what all has been eating at me. and it just seems...like I can't. like there's a wall.

And I know I've always been one to build up walls. I've built up walls for so long, I don't know if there's anyway to tear them down."
****
I wrote this 7 years ago. I was 17, homeschooled, and still living with my father. This was before all the shit hit the fan.

I wonder the same thing this days about love. And walls. Do I put up walls to protect myself, or do I put them up to protect the ones I love? Do I really love? Love still scares me so much. To allow myself to be loved, and allow myself to love. To be that vulnerable, that open, that free with someone. I don't know that I can allow myself to do that... and it scares me because I almost like my walls. They're not the best for me, but they're safe.

How do I tear down and allow myself to be vulnerable?

9.11.11

have you ever heard of a greater love?

This is the day 6 years ago that I decided to write about a youth retreat I'd gone on the previous weekend. It was junior year of high school. To set the setting: I was still living with my father and I was homeschooled. I was attending the Church of Christ. I was full force into self injury, and starting to lapse into an eating disorder. I am not editing grammar or words, but to think the day that my faith was strengthened was six years ago, only to be shattered less than a year later. Only to be torn to shreds. That year I started to climb out of depression, to see the light, to see HOPE. But then senior year happened, and it all fell to shit.

*****


This retreat..blew me away. and I shall share it with you. Because you are all cool people..and I can.

Friday wasn't much. It was Friday. Not much happens on Friday. Just cause it's Friday..'ya know?

I watched soccer tournments on Saturday..fun stuff..and attended an elective Saturday afternoon..which was great...

Saturday was the day. I broke. I’ve been breaking for awhile, and I just totally broke, and I didn’t tell anyone what all was going on. I mean, I can’t even talk about it. I’ve never shared this part of my life with anyone. I’m Angelique. I’m strong. And I made it through the morning fine. Had a blast watching soccer, and eating, and just being a kid, just hanging out and goofing around and hanging out. Which isn’t something that I do often. Finally, it happened. The floodgates broke. And I mean, I was to the point where I was crying so hard, that I couldn’t talk..or sing the words to the worship songs. And I just felt so totally empty inside. And I was. I was empty and broken. and I just sat there and cried. and cried. for at least fifteen twenty minutes…it started out as nothing then got harder…and I was so tempted to walk forward, but let all my fears ingulf me. Kinda like the morning message, when he was talking about fears. I let my fears consume me.

And why? Everything. Like they showed a video of Christ on the Cross…and I lost it. I’ve cut myself when he died for me? Come on! How could I be so lame? How could I turn to myself, when he died for me so I could have life? How could it be? And I’ve felt so empty inside lately, even when singing the worship songs this weekend, and I can’t make myself belive the Bible, like I know what it says, and I know it’s true…and I can’t make myself believe it.

And you know what amazed me more? I was sitting there with two other friends. My youth pastor and the rest of my church was way behind me. A sponser from another church came over to me and asked me if I was alright. And he prayed for me and told me he would be contining to pray for me. It just amazes me. That I'll most likely never see this guy again (unless I'm at other local Ohio events and see him)..and it's just..wow..and he also came over to me on Sunday and told me he was..and it's just amazing..it blows me away..that someone who doesn't even know me can care about me and want to pray for me. That someone who knows nothing about me, my bitter past, my unknown future..and want to help me. And it hurts..and it heals.. 'ya know?

On Sunday..I broke. Again. I'm tired of breaking..but I realized that I do. It's true. I just like God. I don't really love him, I don't really have the burning passion I should. I have so much in my life eating up at me. But I'm too scared to recommit. Which is why I didn't this weekend. Cause I always blackslide. I always fall back into my old habits. So why should I even try to change when I know I'm going to fall back into what I once was agian, 'ya know?

And I feel so empty inside. And broken. And I like God. I don't love Him. and I hate it. Both times..my youth minister asked me if I was alright and if I needed to talk. I told him I didn'tknow if I was alright and that I didn't need to talk..orthat I din'dtk know if he could help..becuase I'm just hurting so much..hurting beyond words I guess?


My elective Saturday night was just plain out spiffy. Chris is so crazy and great. God forgives me, and I really need to forgive myself. I've sinned against God, and I need to realize that. I need to realize that God's given me forgiveness, and I need to let it go. I just can't sit there staring at my sins, and just be like..whoa..that's cool...and not do anything. I need to get in gear, and do something wtih it.

I didn't eat much on Sunday...and so of course, I got told I needed to eat..but I still didn't, and I really don't care. I didn't take communion either. And I feel bad about it, because I attend a church that believes you should take communion every sunday. But my heart isn't right with God. And eveything is broken. So..I can't take it since everything is so wrong..

And I look at the bracelet I got. I didn't even get it when everyone else did..I was crying too hard to go up front..so I dashed up after it was over and grabbed one, but that's ok. Sure, it's too big, and just dangles on my wrist..but hey. I wear it for a double reason. Livestrong. They livestrong through cancer. I support that cause. I am a surviour. I dunno how many of you know that. But I'm a surviour. I had a tumour removed when I was four. Of course, everyone has friends and family members who suffer from cancer, I don't think there's a single soul on planet earth who hasn't been touched in some way, shape, or form by cancer. And in the same way, I can livestrong without cutting. I can livestrong in Christ.

And I'm seriously shutting up now.

****
I see this post, and long for that childlike faith to return. I'd already seen hell at that point and had no clue of the further flames of hell that would lick me again. How I wish I could stay innocent and naive. How I wish I could stay hopeful for such beautiful things.

27.10.11

Love in any language, not so spoken here.

I find myself struggling with love. It's such a simple concept, really, but at the same time it's so complex and layered. It's seemingly simple, but also complicated and painful. There are so many Bible verses that speak of love:

"Perfect love casts out all fear. We love because He first loved us." 1 John 4:18-19
"Love is patient, love is kind. It does not envy, it does not post, it is not proud. blah blah blah" 1 Cor.

And so many more. The Beatles sang that "All you need is love." We need love at the core of our being, it's something we all long and crave for.

But the thing is? Love scares the everliving shit out of me. Imagine being a child, and your father never telling you he loved you. Imagine being a child, and the hands that were supposed to love you wound up hurting you. Imagine it. (This is also why I cannot view God as a father and cannot grasp that theological concept, but that is another blog entry all together).

People who know me know I struggle to tell my friends I love them. Sure, I show it in many ways: I send them small gifts, I send them cards, I write out Bible verses on note cards to encourage them, and so on, and so forth. But to actually say the words "I love you" is SO DIFFICULT.

And I think that is where some of my God struggles come into play: I can't grasp the fact that He loves me so. I can't grasp the fact that I am loved by Him. And it's not that I don't want to be Loved by Him, it's that I don't fully understand fatherly love. At all. Again, the father rant is for another blogpost (likely on 31.10, considering that's my independence day)

Love is so much - and something I crave so deeply. Something my soul yearns for, something my spirit desires.

But I don't understand it,
and it scares me to death.

26.10.11

Sometimes you just gotta buckle down

People have often told me they don't understand how I do it.
How I went gluten free on a tight budget.
How I stay in school with all my health problems.
How I function on my own.
How I make ends meet each month.

The thing is I haven't done anything special. I'm not anyone special, I'm just your average 24 year old who loves Sims and Pokemon, anime and manga, the colour orange, monkeys and elephants, you get the picture. And the thing is before I had to do it, I thought I couldn't do it.

The truth is when you find yourself in difficult circumstances, you somehow find the strength to carry on. When you see others in dire places and think "Wow, I could never do that" the truth is when push comes to shove and it's your only option, you just buckle down and do it. It's not easy. It's painful. It sucks. It's difficult.

But I'm not a superhuman because I am where I am now. Because I stay in school with mostly decent grades (adol psych will come up!), because I live on a small budget, because I do so much myself.

Truth is I don't know how I do it, and some days I doubt that I can keep doing it.

19.10.11

Just take eveything down to highway 61


I hate how my theology class is taking over my blog! So, I'm taking a break from that to do some REAL blog writing. After all, we know I love to write. And babble. And ramble. But that's okay, because that's me, and who I am, right?

My friend and I went up north for the weekend. And I realize how much I fully LOVE nature! I love it I love it I love it. I mean, it's hard for me because it's hard to get around, but gosh, I love it. I loved walking around the outside of split rock light house. I loved walking around and seeing Lake Superior. I LOVE BEING OUTSIDE. I love nature. Even though I hate the cold, I love the feeling of the wind whipping my hair around. Being outside just makes me so HAPPY!

Granted, it's difficult with crutches. Walking is painful, and my weak leg makes things difficult, as well as my off kilter sense of balance. But it doesn't make me not enjoy nature any less, it just means I have to enjoy it differently. I can still climb trees with just my arms (I love climbing things!), and I can limp around and enjoy it.

But gosh, nature gives me such a sense of happiness. It doesn't judge me for being depressed, it doesn't judge me for not being as physically nimble as other people. It lets me take my own pace (until it gets too bitterly cold for that, but you know what I mean). It makes me HAPPY!

but I can't have that happiness often, but for those few glimpses I get to grasp of nature,
for those for moments outside,
it's peace. it's happiness.
it's where I'm meant to be.
I'm able to be outside and see lighthouses (I've always loved lighthouses) and think of how the same way the light saves the ship, there's a light shining head for me, that I'm reaching for, yearning for, leaping toward, that's just waiting for me.

And in that same way... maybe hope, love, grace, joy, peace, all these things I yearn for and dream of are waiting for me.
Waiting to accept me.
Waiting for me to just walk out into them.

12.10.11

god help the outcasts

Yes, I know I'm just an outcast
I shouldn't speak to You
Still I seek Your face and wonder
Weren't you once an outcast too?

I'm struggling. I feel like an outcast - such an outcast. I don't fit the cookie cutter mold I feel it cut out for Christians. I'm "rough around the edges", sarcastic, and cynical. I don't know what exactly I believe about God, and I don't even know why I'm going into ministry. Maybe it's because I want to right the wrongs. Maybe it's because I want to prove to people you don't have to be perfect to be a Christian.

But Lord, I feel like an outcast. A crippled, limping, orphaned outcast. And the thing is?

I ask for nothing, I can get by
But I know so many less lucky than I


I have no reason to whine. No reason to complain.
So many more have it worse. I just want to help people.
To make a difference.
To help people not harbor bitterness like I have, because it's an awful way to live.

8.10.11

An elephant never forgets


I like elephants. That's a bit of an understatement, I love elephants. I also love monkeys, but that's for another post. Well, I'm wearing a monkey t-shirt but the picture angle kind of hides it.

Elephants. An elephant never forgets, they say. A Nora never forgets, either. It in some ways a cool quality I have, I remember when my friends mention wanting something badly, and I try to make it happen for presents. I remember old nicknames and inside jokes. But at the same time, I remember old hurts, old aches, old pains. I don't forget easy, and it's hard because so many things I'd just rather forget. I'd rather forget how much pain I've been through and I'd rather forget where I've been. But forgetting the bad and remembering the good would hardly do me any good. It would only cause further pain.

But oh how I dream.
How I wish that I could just let go of all these things that have hurt me. And only remember the good.

"You can go on living as long as your heart believes,
although the scars of yesterday remain,
let's stay together always."

The scars will remain, both physical and emotional. The scars won't fade, but it doesn't mean I can't go on living and hoping and wishing and dreaming.

25.9.11

I just want you to know who I am


I remember the first time I cried out for help from my depression. I remember the first time I held out my hand. It was 2001 and I was 14 years old. I had braces complete with rubber bands that snapped across the room when I spoke and no sense of style. Exhibit A: school picture from that year. Again, I was so young and naive to many things. I read my poetry from back then, and some of it breaks my heart even now for a much younger me. 14 is far too young to plan out a suicide. 14 is far too young to hold a razor blade in your hand, and makes imprints on tender white skin. I still have those scars. I still see them daily. I still weep for my younger self. But the first time I reached out for help, besides posting on internet message boards that I was broken, hurting, and scared, before emailing my youth pastor and telling him what an inner hell I lived in... was to write a poem, and give it to my Sunday school teacher. This is that poem:

The pain that grips my youthful heart
Rips me up, tears me apart
The tears that brim in my young eyes
Might come to you as a surprise
I cannot handle the pain
Not the tears that fall like rain
The dull, study ache that's settled deep down
The heavy burden that I carry around
But I hide the pain-I hide the tears
I hide the saddness, I hide my fears
Nobody understands, and I feel like nobody cares
And all I can do is say some simple prayers
I just don't know, I gotta get it out
I cannot take this burdern about
No one to turn to, all I can do is cry
No one who'd care if I should die
I'm about ready to use it, I don't know what to do
I guess all I can do is turn to you

I left the spelling errors intact. It didn't seem right to correct them. A month after giving this to my sunday school teacher, I had the police at my school to talk me out of suicide. My parents were blindsided. They had no idea I was so hurting, so broken. I hid it well. I learned that lesson at 14 years old: how to completely hide my pain. How to retreat within myself, how to throw up walls so high that no one could enter, not even myself. I learned how to perfect my facade, how to live within myself. To smile and laugh, and act like I was fine. But the truth is I wasn't. The truth is I was broken. I recently found this snippet of a poem from back then, and my heart broke. I wept.

Just wanna die, just wanna die
Tired of just wonderin' why
Wanna die, wanna be in my grave
Too scared and afraid to wave
Wanna be strong wanna be brave

I was 14. I hadn't lived yet. I had no idea what I would face later in my life, that I would make such painful decisions at age 18 and again at age 21. I didn't know that I would continue to spiral deeper into depression, bounce from counselor to counselor, and have labels such as PTSD and EDNOS slapped on me. That just one cut would turn into a lifelong addiction, and every day is a daily battle to not lapse back into it. I had no idea.

It's scary. I just want to go back and hold my younger self, to tell her at age 24 she'd finally be pulling herself out of all this crap. That she'd finally start approaching the other side, that there's hoping waiting for her. I was fourteen. I shouldn't have felt like this... and yet I did.

ready to smile, and love life



Here she stands today, in her brilliant shining way
Stronger than her pain, in her brilliant shining way

><> ><> <>< ><>

I know what it's like to have crippling depression.
I know what it's like to be consumed with hopeless.
I know what it's like to be drenched in pain, both physical and emotional.
And for the first time, I'm starting to see the other side.
I'm starting to reach out of the abyss.
I'm starting to spread my wings and leap -
leap into hope, leap into the future,
leap into a new life.
I'm a dreamer, a starry-eyed girl, passionate
I love and I live and I laugh and I learn
And I'm more than my disabilites.
I'm more than a list of medications,
a ball of symtoms,
and rattled off disorders.

I am more than an abused child,
rather, I am survivor.
I am more than a victim,
I am an overcomer.
I am more than a child with questions -
Questions about faith and life and love
and God and Jesus and the Holy Spirit
and creation and forgiveness and
sin and the past and the present and
the future
but rather, I am a seeker
Trying to place the pieces of the puzzle together,
trying to finish the row of Tetris.

I am learning to live...
and it's a beautiful ride.



22.9.11

now it's time to say good night...

'Kay, so it's 3:24 am. My alarm goes off at 5:45 am. Logic says I should be asleep. But I'm not. I'm sick - I'm coughing up a lung. I'm in pain - good thing the alarm goes off so I can go to the pain clinic.

But the main reason I avoid sleep lately? It's so I avoid the nightmares. The crippling tiredness is the less painful thing to deal with. If I'm awake, at least I can distract myself from such painful thoughts.

If I'm asleep, there's no solace. No comfort. No serenity.

And it sucks.

This was not very deep. I want to write more - oh, how I long to write. How I long to process my thoughts, get others thoughts on my thoughts (I'm not vain and think my thoughts are profound and amazing, but I like to get thoughts on my thoughts) and all that. But right now I'm on cruise control - just surfing through life the best I can. And it kinda sucks, it really does. Because there's so much going on that needs to come out... but I don't know how to PULL it out!

17.9.11

I've known sorrow, I have known pain.

How ironic. Part of what I'm currently struggling with in Christianity, is right here in front of me. Aye yi yi. I had this convo with my friend Nick a few times. We both suffered from extreme physical ailments, and both lived in constant pain. Nick was one of the strongest Christians I was ever blessed to know. I wish we hadn't had those fights last summer, and I wish he hadn't died this summer. Because I would love to make up, I would love to discuss this stuff with him. But one song he introduced me to (and was also at his funeral) was a song by Chris Tomlin: "And I will rise when He calls my name, no more sorrow, no more pain."

Carry forth on to Luther!

" I believe that God has made me and all creatures; that He has given me my body and soul, eyes, ears, and all my limbs, my reason, and all my senses," (SC, Article 1).

Honestly? I take issue with this. Quite a bit of issue, actually. Fine. God created me. But he created me faulty. When I complained about this as a child, I was told "God don't make junk" and that "all things work together for His glory". All fine and good and well, I suppose. But when I suffer from so many ailments, I can't help but wonder if I somehow got overlooked. I think this is the one aspect of Christianity I struggle with the most. God created me, my limbs, eyes, etc. And these things don't work right and as each day goes on, fall more and more apart. And it's a struggle, because there's so much pain in it. I hope that one day I can grow to accept it, and that I can find God in the midst of my pain. But right now? I cannot.

"For here we see how the Father has given Himself to us, together with all creatures, and has most richly provided for us in this life, besides that He has overwhelmed us with unspeakable, eternal treasures by His Son and the Holy Ghost, as we shall hear." (LC, Article 1, num 24)

I suppose this blog post isn't very uplifting. I try to have one uplifting part, but I'm sick and struggling right now, so it's just not there. I struggle with the fact that "God has provided" when I struggle to make ends meet. When I make my small amount of money I get a month get all the things I need: food, bills, medicine, laundry, etc. I know that at the end of the day all my needs are met, but the stress that goes through making sure they are all is difficult. And even though I know there are eternal treasures in store, I still struggle to believe.

Heh. Slightly depressing post this time, but I guess it happens at times. Such is life.

Author Reflections:
Kinda odd how I keep looping back to the subject of struggling with how God made me. Guess he's trying to teach me something, eh? Guess this is something I need to learn. Guess it's something that's really hitting me lately. That's okay. Maybe I'll learn and accept it, or maybe it's something I'll always struggle with. I think it's perfectly okay to not always have the answers as much as we may want them.